Sjogren's Syndrome
I was diagnosed with sjogren's syndrome this year. I was also diagnosed with fibromyalgia and rheumatoid arthritis. I felt like the wind had been taken out of my sails. All I could envision was a future where my new husband would have to take care of me. Something that I just couldn't fathom. I mean I am the care giver.
For those of you that don't know what the symptoms are, here is a list:
Symptoms vary from person to person but may include:
I went to the doctor because I would wake up about 2 a.m. with horrible joint pain. I didn't think it was arthritis because I wasn't stiff in the morning. I suspected the sjogrens because I get cavities easily, even though I have no plaque or tarter.
- a dry, gritty or burning sensation in the eyes
- dry mouth
- difficulty talking, chewing or swallowing
- a sore or cracked tongue
- dry or burning throat
- dry or peeling lips
- a change in taste or smell
- increased dental decay
- joint pain
- vaginal and skin dryness
- digestive problems
- dry nose
- fatigue
I suppose I could take the woe is me approach to this but I don't. I am learning how to say no to requests of my time and focus only on things that are important to me. I have learned not to get exhausted because it makes my symptoms worse. I am also on a quest to finally take off the weight, just to feel better.
What prompted this journal entry? I have yet another toothache. I have been pondering if I should fill it or pull it. It is pretty inevitable that I will eventually need dentures but I have nice teeth and want to keep them as long as possible.
I'm open to suggestions if anyone wants to let me know what has worked for them.
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